Monday, July 6, 2009

Onion juice

I read a couple websites claiming that onion juice was an alternative treatment. I don't really believe it, but I don't have much to lose besides a few old onions that are doing nothing but sitting in my refridgerator. I blended them together and smeared the concoction on my head. My eyes watered like there was no tomorrow. I should have anticipated this. It isn't like I've never cut onions before. I don't think the prednisone is having much effect besides depriving me of sleep. If the aloe vera does work, it won't be for a couple months. So, I'm supplementing the alternatives where and whenever I can. I won't be going sunbathing again until the current burn heals if I do try that again. Too painful!

Up Early again

Well, maybe taking the prednisone in the morning doesn't make a difference. It is 3 am and I'm awake again. My hair is still falling out, so whatever the prednisone is doing isn't working or wasn't able to stop the damage that had happened prior to Thursday. I'll try again for some sleep.

Sunday, July 5, 2009

More hair fell out...so...

I don't think the prednisone has taken effect yet. More hair came out in the shower and during the day today. I slept later this morning, so it was definately worth it to take the prednisone in the morning as opposed to before bed. Hopefully I will sleep soundly tonight.
Still taking the aloe vera, but I don't know if that is doing anything for me. Sunburn, who knows if that really works. I figure I'll be wearing a wig for at least a year. It will probably take that long for me to psychologically accept it. My wigs look a lot like my natural color. Everyone tells me how cute my hair is when I wear them. I've never had so many compliments on my hair as I get when I wear a wig. Well, it is my hair. I paid for it!

Saturday, July 4, 2009

Ouch!

I read somewhere online that a sunburn acts kind of like a contact irritation and impairs the autoimmune response. So, since yesterday was sunny and I had time, I took a book outside and read next to the pool. It was a little chilly to be sunbathing, so of course I couldn't feel the effects immediately. I'm not in the habit of laying out a lot, so I wasn't terribly concerned about skin cancer, though I probably should have been.
The prednisone must still be in my system even though I didn't take the dosage at last night. I looked at the doctor's orders and it does say take in the morning. I still woke up super early this morning. Oh well. I should be okay. I taper down from the prednisone after 1 week. The insomnia shouldn't last forever.

Friday, July 3, 2009

Wrong side effects

I read that prednisone could make you drowsy and gain weight. I am awake. It is 3:45 am. I should be asleep. I don't even have to work today. Yesterday I woke up around 3 am too. I was able to doze off a little between four and five, but then I was awake again. I didn't have dinner last night. I had a bunch of cherries and lost my appetite. I don't know if it was the new medication or if I just have anxiety about being on a new drug. It could be because I got asked out by a bald guy I barely know. I'm not anxious about him being bald, but he probably doesn't know I wear a hairpiece. He shaves his head. Being male and bald is a little more common than being female and bald.

Thursday, July 2, 2009

Woohoo!

No seizure this morning, so it isn't impacting the effectiveness of my seizure medications. I don't know that it is working just yet. I pulled a clump of hair out a few hours after taking it, but that hair may have been destined to fall out anyway because the drugs hadn't started taking effect. I'm still skeptical about whether it will work. Nothing worked for my sister, but she couldn't take the oral steroids due to diabetes. She didn't try aloe vera, but now she is comfortable without hair and has 2 toddlers to worry about.

Wednesday, July 1, 2009

Prednisone

I was prescribed prednisone for the alopecia. I know that a lot of people are wary of using this steroid, but I have taken it before for asthma and know how my body reacts to it. I asked if it would interfere with the seizure medications and my dermatologist said no. However, if you read websites, some report that it might interact with the seizure medication. I can't imagine that it would be worse than my bout of double vision and vertigo that I was having on my last seizure medication. I took the pill about half an hour ago. I still feel fine. No results to report so far.